myparkinsons.co.uk

Parkinson's Disease

Travelling with PD

Well here I go again,setting forth on a perilous journey using the uk rail network,perilous why,well were back to the beast .The hidden illness PD.Concerns flood my brain ,what if I need the loo shake rattle roll ,for sure I need no further assistance in that respect anyway ive got to get there without falling over or landing in some ones lap.Secret weapon one tenna lady,thats not a promotion its a strategy.

Worst of all I have four trains to catch,Im having a mental wobl at the thought.First organise luggage 2 bags one on wheels a third is to much like mission impossible before I get out of he door so dont attempt that one

So were off, complicated isn’t it and  I havn’t  even go to the the station yet.

I arrive eventually at my local station a quiet 12 mile journey on country roads.Deposit car for collection  later,so far so good 180 miles to go.

The station is like the marie celeste were is everyone only 2 platforms,I see they Have relocated the confectionery machine to the opposite platform, over steps and a bridge.I ponder wether station staff  have relocated it because there on diets or to save them having to top it up.More likley done without thought whatever doesn’t encourage sales, bugger there’s my chocolate rescue bar gone.Ticket officer appears watering can in hand,Ive iterrupted her routine looks at me like ive murdered her plants.

Ticket safe in bag ,only 2 platforms easy this ,tannoy announces train arrival,of the train that left 5 minutes ago,confusing slip of the finger I expect,blame the watering can and automatic messaging,not my fuzzy brain  or PD.

suitcase1

 

October 11, 2014 Posted by | Creativity | Leave a Comment

Poem

April 5TH 2004
Diagnosis Day.My D Day

A visitor came knocking on my door,
so gently at first I did not hear,
Again and again the visitor came,
each time knocking more loudly than before.

Yes I hear you,
the knocking fills me with fear, 
 I know I have to let you in,
What will happen when I do,
If I unlock the door is it over to you.

Are you my enemy,
will you be my friend .
can I embrace you,
 must I face you.
worry  not
of course I do 
every time I think of you

Tomorrow is another day
brave I must be
the door beckons me
on  the other side ,
you I will see

The deed is done the key is turned, 
I want to run away but you wont be spurned 
I know who you are,
we have no choice
at last I listen to your voice
I smile
 I feel better knowing you.
My parkinsons

August 12, 2014 Posted by | Creativity | Leave a Comment

The night I saved the hamster

The night the hamster nearly died

A Steph blog

Beth our 12 year old granddaughter came to stay this weekend along with that darn cat and the hamster which is on an extended life as its already three years old ,its already got a bald bottom which seems to be rather odd as its normal to lose the hair on you head as you get older but hey ho it is a hamster ! , friday night came, bedtime came , Beth being an animal lover kisses the animals goodnight ,when nobby ,as she calls the hamster turn came he would not move ! Panic in her eyes ,Beth went hysterical ,shouting at me to do something , me, not being an animal lover picked the limp body up into the palm of my hand and started blowing into its face , nobby decided to open one eye and looked at me as if to say ” what the hell are you doing ” started to wriggle , me shouting to beth to get hold of it before it bit me ,trying not to chuck it over my shoulder , well after a lot of tears , Beth because she was relieved it was still alive and me from laughing .we  all lived to fight another day !

July 18, 2014 Posted by | Creativity | 1 Comment